Sanfilippo is stealing our son’s childhood.

CureJax is raising awareness, funding, and advocacy for families fighting a rare, rapidly progressive neurodegenerative disease.

Our Story

Jax is four years old.

He’s loud, vibrant, and full of life. He loves Paw Patrol, fire trucks, riding quads with us, being outside, and most of all — baseball.

Jax was diagnosed with Sanfilippo Syndrome Type B (MPS IIIB), a rare and progressive neurodegenerative disease.

We chose to fight.

Jax